These are our stories, individual and collaborative, telling anyone who takes the time to read, what it is like to live with pain so severe that people have taken their own lives to end their physical suffering. We also want this blog to be a place where those of us who are FACEing the PAIN can find solace and comfort among friends who understand.
There are many places on the net to find medical information about our disorders:
- Trigeminal Neuralgia
- Atypical Trigeminal Neuralgia
- Atypical Face Pain
- Trigeminal Neuropathic Pain
- and others
If you suffer severe facial pain or love someone who does, please join us as this blog grows with stories from people around the world who are FACEing the PAIN. This is our site and everyone's story is welcome.
fabulous idea!
ReplyDeleteI am thrilled to be a part of this and feel excited (which is a rare emotion these days) about where this will take us!!
ReplyDeleteCongratulations to all of us for now having a place to vent, to share and to help each other! Thanks so much for all the hard work and all the "brain-storming"!!! Now, sit back and watch how many others come together because of this!
ReplyDeleteI am so thankful to be a part of this family. We share something that is hard for others to understand.. but by doing this, we are allowing them an inside glance at what we go through.. our hurts, mentally and physically. The toll this has taken on our bodies and on our minds is tremendous. We are warriors..and we fight 24 hours a day, just to keep the "monster" at bay. Some days are rougher than others. It's time for our loved ones to see that we and just as importantly-they- are not alone in this battle!
ReplyDeleteI love the whole concept! WOW! to think it all started from an E-Mail on Facebook from one of my TN Sisters! I love her for setting the initial "spark" for this Blog and to another Sister for setting this Blog up! We really do work well together and to think none of has ever met! The Internet IS an amazing thing! I hope to meet you all one day!
ReplyDeleteI truly love all my "TN Family"...We are all spread out all over the world and are joined together by a horrible disease...It is great to know that I am no longer alone fighting this terrible "Monster" who robbed me of my life...
I have to mention that we all have a "Special TN Angel" from Brooklyn, NY who really joined us all together! Without her, we would all still be strangers to each other fighting a disease that still has no answers or a cure....
(((((((((hugs to my TN Family)))))))))
No one should ever be alone when living with TN. I have never needed support as much as I do now and thank everyone who has been there for me and with me through the good days and bad ones.
ReplyDeleteI am just getting used to all this computer stuff but wouldn't give it up for the world :) Welcome to all and we will never be alone again :)
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